Sparks?

Hello there... the angel from my... rainforest?

My enjoyment of research has been partially reignited, probably only temporarily considering my mindset this past 9 months, but it is certainly nice to feel the sparks again 💚.

Despite having minimal sleep, having my physio appointment at 9 am, and then driving out to uni for an hour, today has been quite good. Although, I enjoy my physio appointment, having to race between appointments and things is annoying. 

Someone I am collaborating with came to do a guest lecture today, and I guess seeing and hearing about their passion for rainforests and science is a good thing for me. I went to group lunch afterward, then had a quick meeting with my supervisor and them, and yet to come is dinner with them and a group of mostly professors and one other PhD student. This is A LOT of socialising for me, someone who has not wanted to do any socialising at all for more than a week. I wonder how exhausted I will be tomorrow? 

Anyway, that's it really, just wanted to share that I like trees 🌳. I'll be heading out to the field in a couple of days so I'm going to try and do some desk work now. 

Questioning my path

So I recently just took myself on a solo trip interstate. I very much enjoyed it. This was the first time visiting this city, and the first time travelling somewhere alone and not meeting up with anyone at the other end. I really need to do this more often. I'm not responsible for anyone but myself, I can do what I want for however long I want to. Which for me meant visiting lots of museums and galleries, and spending several hours in the Botanic Gardens! 

It was also great to not have as many loud and intrusive thoughts for a few days. I'm sure they'll pop back up again, but I'm really hoping that they will be a bit quieter, if only for the rest of this month.

Anyway, I've been back for a couple of days now. I had a day of rest yesterday, and a day working from home today because I was too tired to drive anywhere, especially an hour to uni. 

However, now I'm starting to question if I'm even up to a career in academia. I've barely scraped through the past 1.5 years with all of my physical and mental health issues. I haven't even started writing papers or my thesis yet (I don't count methods). 

Perhaps like previous times in my life, after a while of not doing research I will miss it again. Don't get me wrong I really enjoy what I do, it's just the constraints upon me and the battles I fight every single day just to get out of bed or to take a shower are exhausting. I don't know if I can keep doing this long term, something in my life has to change simply so I can function more efficiently. 

What would I do instead? Do more animal work for a while, but I know from experiance that won't be enough to intellectually stimulate me forever. It also won't be able to get me out of the financial situation my family is in. I could also do more casual work at universities, but there's not too much job security in that, there is also a preference to hire internally. I could also go back to making content, but that never really made me much money, and I hate the technological side. 

I have no urge to quit my PhD, I 100% want to finish this. However, I am doubting if I can continue in this line of work afterwards with how I am now. Will I ever be able to swim? :P

Unplanned time off

After a great weekend out herping (searching for amphibians and reptiles) I was absolutely exhausted on Monday. I did not end up driving into campus as it would probably not be the safest for me to be driving for an hour or so. I did some image analysis at home, but the access to the remote system wasn't working very well so I couldn't do much from home. I also kept falling asleep at the computer.

Accepting that I need a day of rest after a weekend with humans, driving for several hours by myself, and just doing any activity is still not easy for me. I want to be able to do more still. A weekend doing something for myself (in this case a herping trip with a society) was great for my mental health, but I am still left completely physically broken afterwards. It is so frustrating. I wish doing things for myself actually recharged my batteries rather than also ran them down. But I guess I'm not in the best place as of late and even these things drain me more than I would like. 

My mental health must really be in a state when even the things that make me mentally feel better are wearing me this thin. My physical health is certainly not blameless though. This increased migraine severity in my mid thirties is certainly a real douze. 

Oh but don't worry my dear readers, the struggles of my life do not end there. My mother tested positive for covid last night, and as someone of high risk we were advised to go to the emergency department at hospital. So we ended up at hospital around 1 am. We saw the nurse and the doctor, all looked good so far, but bloods were taken just to check, that would be an hour before we got the results for that. Almost 2 hours later I asked what was happening, and whilst the bloods were normal, they could not dispense the anti-viral medication until 7-7.30 am. We were finally able to leave the hospital around 8 am. Now as messed up as my sleep and body already were this was the final straw. Around 3.30 am at the hospital I emailed my supervisor requesting sick leave. Even if Mum's covid is manageable and I don't contract it from her, there was no way I could see myself being able to work this week.

Anyway we got home had something to eat and I went to bed somewhere between 9 and 10 am. I may have been in bed for about 10 hours but I only got about 7 - 8 hours sleep, I woke up several times and I also had a massive headache (the chairs at hospital probably aided with this). I eventually give up on sleeping and trying to rest in bed and get up, the massive headache continues. I take something for it but only generic painkillers not migraine meds. It's decreased the pain a little bit but I can feel it's all still there, its just been pushed back a little bit for now. 

It's 11 pm now. I have no idea what I'm doing. I'm sick of being in bed and asleep, I want to do stuff, anything, but I also need to have some sort of diurnal schedule as I start my group DBT on Thursday and assuming I don't get covid, I need to get to that in person, it starts at 10 am.

So there we have it, between my own mental and physical health problems with the addition of my a family members health and my carer responsibilities, I have decided to take another week off. Although doing an official request is still confusing to me since my candidature time is still being eaten up when I'm on sick leave - I guess it's for record keeping purposes. 

I can't really concentrate on writing anymore.

Here's a little reminder..

Absence of negative emotions ≠ happiness

The absence of negative feelings does not equal happiness.

That statement is something I need to remember. It's completely logical, but often forgotten. remember, when you are bored or indifferent you are neither experiencing a negative nor positive emotion. 

I've been listening to The Psychology of Depression and Anxiety - Dr Scott Eilers. That's where this reminder came from, but also some other things I picked up on whilst listening to an episode on happiness. 

He talks about how our life experience is all internal, and everything outside is just stimuli. I absolutely love this. He further goes into how it's all about how we translate or interpret said stimuli that give us our life experience. An example he uses is if you're in another country and everyone speaks a language you don't understand. That stimulus means nothing to you unless you can translate it. Sometimes when we have health problems (mental or physical) our translator doesn't work - it just doesn't get the message through to us or it distorts the message so we are not receiving what the message is in reality. 

Anyway, I started listening to this episode for a second time to reinforce some of this stuff. I've listened to quite a bit of his stuff these past few months, and I highly recommend it. It compliments any other therapy you might be receiving too. He also posts it as YouTube videos if you prefer a visual (see below).

Stretching borrowed time

 Oh my goodness, I am so tired. Even after the long weekend I am not yet recovered from my fieldtrip.

I didn't make it to uni yesterday, I was super tired and had a headache. managed to get here today, but I have noticed the increasingly common behaviour that as soon as I park the car I need to sit in it for about half an hour just to get over the drive. I just don't have the spoons to deal with work and socialising.

I mentioned earlier this year, that I was on borrowed time, I am definitely stretching that borrowed time to the very max now. Just two more months, that's all I need to push through. Today I submitted my request for a leave of absence starting in April. The way the system works it will go until almost the end of June. Three months is more than I initially planned and wanted to take off, but considering how broken I feel most of the time, it is probably very much needed.

During that time I plan on trying to rest and recover, see a new migraine specialist, trial at least one new medication, and have a couple of short holidays away. My GP prescribed a new medication to help with my sleep and possibly my migraine, but I am yet to start it as they said it will make me extra sleepy the first few days of taking it. I certainly don't need extra sleepiness right now. I am hoping to somewhat recover a bit more from my field trip and then start taking it at the end of a working week. 

I also still need to go get my blood tests and a CT scan. I was going to get my blood tests this week but then my uterus decided to punish me for not making a baby, so I should probably wait before I get more blood removed from my body, especially considering my current exhaustion. 

On a completely different note, I am already getting excited for Eurovision! I rarely get excited for things, but Eurovision is a constant good thing in my life. I'm semi-following Norway's 'Melodi Grand Prix', Ukraine's 'Vidbir', and Lithuania's 'Eurovizja'. I have never really followed the Eurovision selection process in other countries before, but several artists I follow are competing in the aforementioned contests; Keiino, Melovin, and The Roop, respectively. 

Aw, my partner just sent me the best message regarding my taking leave: "it sucks that it has come to that", the exact acknowledgement that I need 💓

A good week?!

Wow, so this week has been a strange one for me. As in, I think it's been good?! What the hell is good?! It's really freaky to be honest. I've felt productive, I've woken up before 9 am and not been completely exhausted, I'm generally in a good mood. 

I've been house sitting for the past ten days, only to finish yesterday. So this has definitely lifted my mood. Let me breakdown how this is good for me:

• Being in a house by myself (happiness ++)

• Three cats, 2 of which like me, and one of those I have chosen to be my cat girlfriend many years ago <3 (happiness +, social +)

• Three chickens, one of which used to be my chicken (happiness +, social +)

• Dishwasher (happiness +, comfort +)

• Spacey kitchen (happiness +, mental health +) room to cook nice meals (happiness +, physical health +)

• heating (happiness +, physical health +, comfort +)

• desk space and monitor to work comfortably from home (mental health +, comfort +, health +)

• access to Netflix, allowing me to watch season 2 of a series I first watched in 2020 (happiness +)

• pillow that is more comfortable than my own (physical health +), this means less migraine symptoms (comfort +) - I need to buy one of these, it sort of looks like the image below.

But more has happened that has also likely influenced my mood.

I was unable to meet with my uni counsellor the other week when I was very bad. So I contacted the psychologist that my family has worked with before to see if they had time. I have met up with my counsellor just over a week ago, which kind of helped, but I have also met up with the psychologist this Monday as well. I pretty much spoke to them both about the same thing that was my last post, fairly cat focused. However, after going over it again on Monday with someone else, I have been feeling good. Lets break down why this might be the case.

• talking through my problems yet again, getting more validation and acknowledgement about my life situation
• Psychologist is private, not uni associated. The session could be about whatever I wanted with no mention of uni work if I so desired. 
• Less time to travel getting the psychologist than the uni
• They have worked with members of my family for more than 5 years at least, so they know a lot of what my life involves already
• they are male, and I always get on better with males than females
• I feel easily very comfortable with them, its like chatting with a friend 

= Psychologist (mental health ++, social +)

I know they cannot be my "friend" per say, they are a health professional and I am their client. We have similar interests as well, which also can blur the lines a little sometimes. I have been aware of this for a while and it's the reason why I was not seeing them already. I quite self-aware that I could be projecting a relationship that did not exist, so I was avoiding one on one sessions with them for a while. I brought this up on Monday too, and they totally get it. It feels good to have brought it up and have yet more feelings acknowledged and validated. 

One last thing, my supervisor is away for a month, so I feel less pressured with my PhD :)

So overall:

happiness = 9+

social = 3+

comfort = 3+

health = 7+

Now how do I keep getting these positives in my life? What happens now I am back home and the negatives are loitering just around the corner? 

I'm not going to spend too much time on those thoughts, I have the motivation to do other important things, like my PhD, so let's just ride the motivation train for now?

How I came to see the spoons in my life

Spoon theory is often used by people with chronic illness, whether it be physical or mental. These people are known to be referred to as 'spoonies'. 

I've known about spoon theory since the beginning of covid, however, I at the time I was not able to apply it to my life.  After this past week I totally understand the concept of spoon theory and can 100% apply it to my life right now.

It all started last week. Monday I had a bad migraine in the field and had to stay in the car while the others did work. I was NOT able to function at all! Luckily, I took some Rizatriptan with me and I was able to get back to work the next day. I was really looking forward to the next days we were visiting a National Park I had not yet been to, we were meeting up with some botanists, and I just enjoy being in the field.

I managed to hold myself physically together with only mild headache and related symptoms for the rest of the field trip, however, emotionally I soon reached my limit.

Tuesday night I got the message that one of my cats had escaped and not come home. I had a lot of trouble sleeping that night. I was waking up almost every hour and having to check my phone to see if he had returned home. For Wednesday's fieldwork I was wrecked. With a lack of quality sleep, in addition to my post migraine symptoms, on top of that I was barely holding it together emotionally. Even with my lack of focus I managed to work with the team to get what we needed done by lunch time. After lunch I went into the local university to pack up my lab set up.

On the way to the university, a couple of stops to breathe, and a lot of music helped me to get there. Once I was there I was able to mostly focus on packing up my gear and downloading some data. As soon as I got into the car to leave all the worry and anxiety about my cat was back. I rang my mum and my partner while I had reception to find out what was happening and it was just nice to talk rather than messaging all the time. After those phone calls I sat in the car crying and having a mini breakdown. Once I was done I treated myself with an ice-cream, and went back to the accommodation with my field team. 

Once back in the company of humans, I automatically went back into full mask mode where I appeared to be functional and not showing that I was on the edge. Thankfully, I was messaged by my home crew (mum and my partner) that they found the cat up in a tall tree. They couldn't get him to come down but I could physically feel the relief run through me. I had no more pains in my chest and no more nausea. I got to sleep a little easier that night, even though the cat was still not home safe, as at least I knew he was alive and in the area. I still woke up a couple of times after I got to sleep, and thankfully around 3 am I woke up to a "he's home" message. Afterwards, I did not wake up until the morning. 

By now it was Thursday and time to head back to Sydney, which was 8 - 10 hours drive away. Good thing I got some sleep the previous night! 

Unfortunately, it was just the eye of the storm for my emotional ordeal that week. After a few hours of the journey I get a call from mum about booking in my eldest cat in to see the vet as he was very wobbly on his feet. I try not to make too much of it for the next couple of hours, but I make sure I am not driving when the appointment was so I could hopefully speak to the vet. This particular vet and I communicate quite well. The storm starts again when the vet mentions that it may be the beginning of the end in regards to my precious eldest cat. Pretty much straight after I got off the phone, it was my turn to drive for the next 3 hours. This was probably a good thing as it gave me something to focus on rather than my cat's health. The drive went well, and we parted ways once we got to where I had parked my car. I then headed home for the final part of my journey. 

I get home. I carry a couple of things into the house, leaving my door open and the car light on, thinking I would continue to unpack the car. I went down to see my baby boy and he was not well. He was very wobbly, walking strange, and not interested in the food he was given. I could not leave his side, not even to get my bags in from the car. My partner arrived soon after, and he and my mother unpacked the car, and set up a floor bed in mum's room where my cat sleeps (I can't have him in my bedroom as he does not get on with the other cats, and it is the coldest room in the house). During this time of them helping me with basic things I broke, I completely broke. I could not do this anymore, I was exhausted. I got some sleep that night, but woke regularly to check on my cat. 

The next day my cat was showing signs of improvement. I had increased his medication, I was hand feeding him, and I was keeping him company (which he loves). He was still a bit wobbly but much better than the night before, where he looked like he had almost given up. I was able to separate myself from him for a bit over an hour to get to my remedial massage appointment, at which I was told my body is bad again. I think I then got home and took a nap with him. 

Again, that is not all, it's only Friday still. Day three. So that evening we get a knock on our door, our neighbour that I've known for about 25 years had passed. Not too surprising, he was in his 70's with chronic health problems, but still it was a bit of a shock. As he lived alone his pet bird is now at our house, although we don't really have the room for it, and did I mention the cats? A bunch of other things that were his are also at house that sister gave us, some consumables like food and toilet paper, also some blankets and towels that we are looking at donating to an animal shelter or vets. Back to Friday night, we spent a couple of hours helping his sister organise some things and then again on Saturday. 

Thankfully my cat was still improving so I could do some of the things I had planned and needed to do at university. Late Sataurday afternoon I finally had the chance to head out to the university to attend my live plant samples and set them up in the lab. Fortunately, my partner offered to drive me out to uni and keep me company while I worked. So from about 5.30 pm to 9 pm I worked. I did not get to do everything I needed to but I did what I could. 

Sunday I was dead, I needed to sleep. My cat was improving still which was great, but I still decided to sleep on mums floor to be with him. Mum's partner brought over a small air mattress for me to use, and that has very much helped with the comfort. I think it was around today that the spoon theory clicked with my situation. I had no spoons to deal with anything.

Monday I had prebooked a counselling appointment, just my regular meet up that helps me to function with my crazy life. However, that morning I got a message saying it needed to be rescheduled. Well, there goes that outlet, although I did get to stay in bed with my cat a bit longer that morning. I got to uni around 12.30 pm and did some more lab work. I left around 4.30 pm to get to a reptile society committee meeting that was thankfully in my local area. I had a pub dinner and slept on mums floor again.

Tuesday and Wednesday I got to uni at 2 pm. Both days just in time for a meeting. Then I went back to the lab again. Tuesday was my brothers birthday so we got some take out to have at home. I also messaged my brothers psychologist asking if he had some time for me this week, but unfortunately not. Wednesday, the reptile society was having a book launch so I went to that and helped out a little. Wednesday I survived of a mocha and a few snacks all day. I did not eat anything else when I finally got home, I just went to sleep on mums floor.

We are finally at Thursday, today. I got to uni around 2.30 pm, sat in my car for about an hour eating some lunch I brought from home and playing on my phone. Then I went back to the lab and finished doing some more of my work. I got home around 8 pm, heated up a frozen mac and cheese, and decided it was time to use this outlet to get out some what's been going on with me. 

My next counselling appointment is hopefully next Monday. I have also booked in with my brothers psychologist for the week after. He has seen my whole family before, and the familiarity with our situation I feel is a good reason for me to update him a little bit with what's going on. I have a lot going on that I have mentioned here, but with my life there is always more and I need to talk through it.

I have been tracking my spoons for the past few days with an app. I have come to realise it uses a spoon just for me to get up in the morning, another to get dressed and at least 2 more just to drive out to the university. There are only 12 spoons in a day and one third is used up before I even start working on my PhD. Tracking my spoons has helped me to realised how fragile I actually am right now and is helping me to acknowledge how hard it is for me to do basic things like, get dressed in the morning.

Another intense week...

So, I made it back to uni Mon- Weds this week! This is a bit of an achievement for me. After being away for so long it feels weird in many ways. The weirdest feeling is the social aspect of it. Seeing people after so long, and some of them wondering where you have been and having to explain a certain amount to them is always a bit scary. I am thankful I actually have a physical problem (migraines) and not just autistic problems and carers responsibilities, since people seem to understand physical problems so much better. As progressive as society is in some ways, I would not be able to explain my autism properly in a way that others would even begin to comprehend, especially since I present so well. I am a master at masking not just my autism, but also all my other stresses, responsibilities, depression and even my physical pains. Something else the majority of people my age and younger don't understand is carers responsibilities. Almost everyone here that I have spoken only has themselves to worry about. They have no dependents, and as such the only financial and time related responsibilities have been self-related. I mention that I help care for my family and they can't even comprehend what I mean by that. They are fortunate enough to either not have disabled family members or have other family members that can care for them. I have been asked why I don't just leave my family to look after themselves with the public health systems to help them out? Anyone who has delt with the public health system knows it does not properly support low-income people with non-physical disabilities. 

In other news, one of my 3-year-old boys got a urinary blockage and had to spend a couple of days at the vet. He is home now seeming happy, and his brother is definitely much happier to have him home! He had to spend time at a 24/7 emergency vet clinic, they wanted to keep him a couple more nights, but thankfully they let me take him to my normal vet after the first night. This made the vet bill more than 10 times cheaper! My Youngest girl (who acts like the boys) also had a dental procedure last week. She is less than a year old and has already had to have teeth removed. They said she probably would not want to eat that night. but as soon as I brought her home, she went straight to the food bowl and was eating! Both of these cats really love their food! 

Saturday was Mum's 60th afternoon tea that I organised. It seemed to go well with people enjoying themselves. Only after the last guest left did I realise how much physical pain I was in though. While I was busy making food, and entertaining people I totally blocked out any headaches I had. I also realised once they left that I had only sat down maybe 2 minutes over the past 4 hours or so and my feet and lower back were quite sore.

Lastly, I had a short work shift on Sunday. I was thinking, great its a short day and I can have half a day at home to recover after the week. Of course that didn't happen. I was using the work car and got a flat tyre. Being a Sunday, there were no tyre shops open anywhere where I was, and NRMA could only tow me to the tyre shop and leave me there, with all the animals in the car. Thankfully my wonderful partner gave up his day off to come and get me and the critters to take us back to where they live and to where my car was. 

So I'm back at Uni today and have a whole week of PhD work to do again, with no time to actually rest. I do have a couple of science talks in a pub I will be going to which I will enjoy. However, while I may be doing enjoyable activities, I am still not getting to actually sit down and do nothing but rest. I still have on and off headaches of varying degrees of pain, but thankfully no debilitating migraine symptoms for a maybe a week. I can also be thankful for having perfect eyes. I had an optometrist appointment last week and they did several different tests, and I was perfect for them all! I even got to see behind/inside my eyes :D That was really cool!

Here is a picture of what it kind of looked like (not my eye):