Showing posts with label carer. Show all posts
Showing posts with label carer. Show all posts

Tuesday, 20 February 2024

Unplanned time off

After a great weekend out herping (searching for amphibians and reptiles) I was absolutely exhausted on Monday. I did not end up driving into campus as it would probably not be the safest for me to be driving for an hour or so. I did some image analysis at home, but the access to the remote system wasn't working very well so I couldn't do much from home. I also kept falling asleep at the computer.

Accepting that I need a day of rest after a weekend with humans, driving for several hours by myself, and just doing any activity is still not easy for me. I want to be able to do more still. A weekend doing something for myself (in this case a herping trip with a society) was great for my mental health, but I am still left completely physically broken afterwards. It is so frustrating. I wish doing things for myself actually recharged my batteries rather than also ran them down. But I guess I'm not in the best place as of late and even these things drain me more than I would like. 

My mental health must really be in a state when even the things that make me mentally feel better are wearing me this thin. My physical health is certainly not blameless though. This increased migraine severity in my mid thirties is certainly a real douze. 

Oh but don't worry my dear readers, the struggles of my life do not end there. My mother tested positive for covid last night, and as someone of high risk we were advised to go to the emergency department at hospital. So we ended up at hospital around 1 am. We saw the nurse and the doctor, all looked good so far, but bloods were taken just to check, that would be an hour before we got the results for that. Almost 2 hours later I asked what was happening, and whilst the bloods were normal, they could not dispense the anti-viral medication until 7-7.30 am. We were finally able to leave the hospital around 8 am. Now as messed up as my sleep and body already were this was the final straw. Around 3.30 am at the hospital I emailed my supervisor requesting sick leave. Even if Mum's covid is manageable and I don't contract it from her, there was no way I could see myself being able to work this week.

Anyway we got home had something to eat and I went to bed somewhere between 9 and 10 am. I may have been in bed for about 10 hours but I only got about 7 - 8 hours sleep, I woke up several times and I also had a massive headache (the chairs at hospital probably aided with this). I eventually give up on sleeping and trying to rest in bed and get up, the massive headache continues. I take something for it but only generic painkillers not migraine meds. It's decreased the pain a little bit but I can feel it's all still there, its just been pushed back a little bit for now. 

It's 11 pm now. I have no idea what I'm doing. I'm sick of being in bed and asleep, I want to do stuff, anything, but I also need to have some sort of diurnal schedule as I start my group DBT on Thursday and assuming I don't get covid, I need to get to that in person, it starts at 10 am.

So there we have it, between my own mental and physical health problems with the addition of my a family members health and my carer responsibilities, I have decided to take another week off. Although doing an official request is still confusing to me since my candidature time is still being eaten up when I'm on sick leave - I guess it's for record keeping purposes. 

I can't really concentrate on writing anymore.

Here's a little reminder..



Wednesday, 31 May 2023

The financial cost of education

It's June now. Which means my university debt (HELP or HECS) just went up because of indexation.

Here is what indexation is:

"There is no interest charged on HELP debts.

However, indexation is added to your debt on 1 June each year.

Indexation is applied to your debt to maintain its real value by adjusting it in line with changes in the cost of living."

- Study Assist - Loan Indexation

This happens every year, however, this year the rate of increase was 7.1%. This is the highest it has ever been over the past 10 years. 

See: ATO Indexation Rates

Having done an undergraduate degree and a postgraduate degree my debt is obviously going to be higher than the majority of the population that only does an undergraduate degree and then finds a job. 

As much as I would love a free education like back in Whitlam's (1970's and 1980's) or like it is in some Scandinavian countries, I can accept that there are costs to getting an education and I am thankful that as an Australian citizen from a low socioeconomic background I am still able to go to university by getting a loan from the government. 

I can also accept to some degree that the longer it takes to pay off a loan the more it goes up. However, the amount it goes up by, specifically this year is quite ridiculous. 

Another thing I find unacceptable is when it is obligatory to make repayments. Currently you must start making repayments when you earn approximately only $5000* more than the minimum annual wage in Australia. To be fair, the less you earn the less percentage you have to pay off and vice versa, but I believe the minimum repayment income should be raised so people actually have a chance of not just getting out of debt, but also so they have a chance to invest in their future.

*This figure is APPROXIMATE

As a PhD student I earn below the minimum wage, despite being expected to work full-time hours, so I am currently not required to make payments to my loan. However, this year I made my first voluntary repayment. Not that it will reduce my debt, but rather keep it as it is.

**Yesterday my debt was 'y', I made a payment so my debt was 'x'. Today, after indexation is applied my new debt will be 'y' again. I can't afford to make a massive repayment, even the payment I did make is taking it straight out of my very limited savings. But if I did not make this repayment my debt would have increased to 'z'. 

**Where 'x' is the lower amount, followed by 'y', and 'z' is the highest amount.

I was debating with myself whether to make a repayment at all. Especially considering due to my disabilities and my carer responsibilities I may never earn enough to have to pay off my debt. However, I decided to be hopeful that one day I will be earning above the minimum wage and may even be in a position to apply for a home loan (with my partner, as a single income is rarely enough to buy any property these days). If I let my debt increase, I would not just have more to pay back in the future, but it would also affect any borrowing power I/we might have. 

Fingers crossed I made the best decision - that is being less well off now to be better off in the future.



Sunday, 21 May 2023

Another intense week...

So, I made it back to uni Mon- Weds this week! This is a bit of an achievement for me. After being away for so long it feels weird in many ways. The weirdest feeling is the social aspect of it. Seeing people after so long, and some of them wondering where you have been and having to explain a certain amount to them is always a bit scary. I am thankful I actually have a physical problem (migraines) and not just autistic problems and carers responsibilities, since people seem to understand physical problems so much better. As progressive as society is in some ways, I would not be able to explain my autism properly in a way that others would even begin to comprehend, especially since I present so well. I am a master at masking not just my autism, but also all my other stresses, responsibilities, depression and even my physical pains. Something else the majority of people my age and younger don't understand is carers responsibilities. Almost everyone here that I have spoken only has themselves to worry about. They have no dependents, and as such the only financial and time related responsibilities have been self-related. I mention that I help care for my family and they can't even comprehend what I mean by that. They are fortunate enough to either not have disabled family members or have other family members that can care for them. I have been asked why I don't just leave my family to look after themselves with the public health systems to help them out? Anyone who has delt with the public health system knows it does not properly support low-income people with non-physical disabilities. 

In other news, one of my 3-year-old boys got a urinary blockage and had to spend a couple of days at the vet. He is home now seeming happy, and his brother is definitely much happier to have him home! He had to spend time at a 24/7 emergency vet clinic, they wanted to keep him a couple more nights, but thankfully they let me take him to my normal vet after the first night. This made the vet bill more than 10 times cheaper! My Youngest girl (who acts like the boys) also had a dental procedure last week. She is less than a year old and has already had to have teeth removed. They said she probably would not want to eat that night. but as soon as I brought her home, she went straight to the food bowl and was eating! Both of these cats really love their food! 

Saturday was Mum's 60th afternoon tea that I organised. It seemed to go well with people enjoying themselves. Only after the last guest left did I realise how much physical pain I was in though. While I was busy making food, and entertaining people I totally blocked out any headaches I had. I also realised once they left that I had only sat down maybe 2 minutes over the past 4 hours or so and my feet and lower back were quite sore.

Lastly, I had a short work shift on Sunday. I was thinking, great its a short day and I can have half a day at home to recover after the week. Of course that didn't happen. I was using the work car and got a flat tyre. Being a Sunday, there were no tyre shops open anywhere where I was, and NRMA could only tow me to the tyre shop and leave me there, with all the animals in the car. Thankfully my wonderful partner gave up his day off to come and get me and the critters to take us back to where they live and to where my car was. 

So I'm back at Uni today and have a whole week of PhD work to do again, with no time to actually rest. I do have a couple of science talks in a pub I will be going to which I will enjoy. However, while I may be doing enjoyable activities, I am still not getting to actually sit down and do nothing but rest. I still have on and off headaches of varying degrees of pain, but thankfully no debilitating migraine symptoms for a maybe a week. I can also be thankful for having perfect eyes. I had an optometrist appointment last week and they did several different tests, and I was perfect for them all! I even got to see behind/inside my eyes :D That was really cool!

Here is a picture of what it kind of looked like (not my eye):



Monday, 24 April 2023

Why start Academia against the odds?

Hello world, I am a first-year PhD student looking into rainforest ecology. 

I often find myself questioning why I am doing my PhD. Some might say this it is normal to question what you are doing, list the pros and cons of continuing and make a decision. However, I question myself on a daily basis, sometimes several times a day. I feel as if this is a little bit more often than usual.

I am constantly reminded that I face many challenges in my career, especially going into academia.

- I come from a low socioeconomic background,
- I am the first in my family to complete any university degree, 
- I get regular migraines,
- I am a partial carer for disabled adults in my family, 
- I am diagnosed as being on the Autism spectrum, 
- I have Generalized anxiety disorder, 
- I am known to get depression, 
- and there is ADHD in my family, so I likely have some of these traits as well.

Despite all of this I also know that these challenges won't go away and my questioning of what I'm doing will remain regardless of what I am actually doing.

I am starting this blog as a way to acknowledge and recognise what is going on inside my head, and to help me work through, what I will likely refer to as 'my madness' in future posts. 

I used to blog as a teenager and in my early 20's and found it helped me to process things and to stop bottling it up inside. 

So here's to my early-mid 30's self-help blog? 




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