Showing posts with label autistic. Show all posts
Showing posts with label autistic. Show all posts

Wednesday, 14 June 2023

Fieldtrip but not in the field

 It's been a little while since I've posted. That doesn't mean everything is going great or that everything is going horribly, it just means I've been very busy and I haven't had the time of motivation to write here even though it can help me deal with what's going on.

I'm on a field trip right now. It's nice to be out in the field, but for me, this trip also involves going to town to the local university to work in the lab some days. Currently, I've spent more time at a university than out in the rainforest which is not the best for my mental health. When I am away from home, being out in nature is what keeps me sane and happy. At the moment it feels like I am doing the same thing I would be at home, just in a different location and without my usual support network (especially animals). I always miss my animals, but this trip is probably the first field trip where I am noticing how their absence is affecting my demeanour.

Don't get me wrong, it is nice to have a break from the usual stressors of my home life, and it's a lovely little place we are staying in (it has the same number of rooms as my house with the added bonus of a fireplace :)). The people I am on the trip with are also nice, but they are just not the same social therapy that animals provide me. Animals definitely recharge my batteries and help me to keep going, Nothofagus trees are also a good thing to help me keep going. 

Here's an example of how I am responding to the situation I am currently in:

I went to bed at 9.30pm, and I must have become unconscious by 10.30 pm at the latest as I did not see the messages my partner sent around then until this morning. I did not awaken until 8.30 am when someone came and knocked on my door. Albeit I forgot to set my phone alarms and only had my watch alarms (only vibrates), by society's standards should I really be sleeping 10 hours without disturbance straight? My body thinks so, in fact, my body would probably have stayed unconscious for at least another hour. 

So I get up and start to get ready as my trip-mates head off to the lovely rainforest I get to look forward to another day in the lab on a university campus. I enjoy having independence from my trip-mates, but I would rather be out in nature. Then, instead of heading off to uni as soon as possible to get my work done so I can go to the field tomorrow, I start to dawdle and feel really unwell. Not like nausea, just mentally bogged down, on the verge of crying (a rarity for me), with a heavy feeling in my chest, and still quite tired. No one is here, so my automatic mask of being functional is gone and I am left to my own devices. It's almost 10am now, and I will head off soon, but I needed to share how crappy I am feeling right now in the hopes that typing it out will alleviate some of the stress and general 'yuck' feelings I am experiencing.

On a good note, I am relatively headache-free right now, with only a few short attacks yesterday!

Sunday, 21 May 2023

Another intense week...

So, I made it back to uni Mon- Weds this week! This is a bit of an achievement for me. After being away for so long it feels weird in many ways. The weirdest feeling is the social aspect of it. Seeing people after so long, and some of them wondering where you have been and having to explain a certain amount to them is always a bit scary. I am thankful I actually have a physical problem (migraines) and not just autistic problems and carers responsibilities, since people seem to understand physical problems so much better. As progressive as society is in some ways, I would not be able to explain my autism properly in a way that others would even begin to comprehend, especially since I present so well. I am a master at masking not just my autism, but also all my other stresses, responsibilities, depression and even my physical pains. Something else the majority of people my age and younger don't understand is carers responsibilities. Almost everyone here that I have spoken only has themselves to worry about. They have no dependents, and as such the only financial and time related responsibilities have been self-related. I mention that I help care for my family and they can't even comprehend what I mean by that. They are fortunate enough to either not have disabled family members or have other family members that can care for them. I have been asked why I don't just leave my family to look after themselves with the public health systems to help them out? Anyone who has delt with the public health system knows it does not properly support low-income people with non-physical disabilities. 

In other news, one of my 3-year-old boys got a urinary blockage and had to spend a couple of days at the vet. He is home now seeming happy, and his brother is definitely much happier to have him home! He had to spend time at a 24/7 emergency vet clinic, they wanted to keep him a couple more nights, but thankfully they let me take him to my normal vet after the first night. This made the vet bill more than 10 times cheaper! My Youngest girl (who acts like the boys) also had a dental procedure last week. She is less than a year old and has already had to have teeth removed. They said she probably would not want to eat that night. but as soon as I brought her home, she went straight to the food bowl and was eating! Both of these cats really love their food! 

Saturday was Mum's 60th afternoon tea that I organised. It seemed to go well with people enjoying themselves. Only after the last guest left did I realise how much physical pain I was in though. While I was busy making food, and entertaining people I totally blocked out any headaches I had. I also realised once they left that I had only sat down maybe 2 minutes over the past 4 hours or so and my feet and lower back were quite sore.

Lastly, I had a short work shift on Sunday. I was thinking, great its a short day and I can have half a day at home to recover after the week. Of course that didn't happen. I was using the work car and got a flat tyre. Being a Sunday, there were no tyre shops open anywhere where I was, and NRMA could only tow me to the tyre shop and leave me there, with all the animals in the car. Thankfully my wonderful partner gave up his day off to come and get me and the critters to take us back to where they live and to where my car was. 

So I'm back at Uni today and have a whole week of PhD work to do again, with no time to actually rest. I do have a couple of science talks in a pub I will be going to which I will enjoy. However, while I may be doing enjoyable activities, I am still not getting to actually sit down and do nothing but rest. I still have on and off headaches of varying degrees of pain, but thankfully no debilitating migraine symptoms for a maybe a week. I can also be thankful for having perfect eyes. I had an optometrist appointment last week and they did several different tests, and I was perfect for them all! I even got to see behind/inside my eyes :D That was really cool!

Here is a picture of what it kind of looked like (not my eye):



Wednesday, 26 April 2023

Another day, another migraine

Today I woke up with a migraine. 

What a migraine is for me includes the following symptoms:
- light sensitivity
- pain behind my left eye
- pain in my jaw, mostly left side
- pain throughout my head, mostly on the left side
- the desire to insert objects into my skull in an attempt to relieve the pressure in my head
- tiredness (but this is almost a constant in my life)
- differing levels of nausea (not always, but yes for today) 

I am currently at the beginning of Day 4 of 5 of an R course. Reflecting over my life there is definitely some correlation between the two, but what evidence is there to support that this R course is the causation of this migraine?

- R is computer software, therefore I have been sitting at a desk on a computer for several days straight (Sedentary +, Posture -)
- I am not technologically inclined. Statistics and programming is a steep and stressful learning curve (Anxiety +)
- I need time in nature to replenish my energy. Doing this course means I have only had one break a day to go outside. (Anxiety +, Tiredness +)
- There was a public holiday this week, therefore my usual yoga class was canceled (Sedentary +)
- The public holiday also meant the uni was closed, but I still had to come into campus where the kitchens were locked so I could not heat up my food in the usual place,  I could not drive into campus through the usual gate. These things added time to finding a way in/out of campus and looking for a kitchen could get into (Anxiety +)
- I am in a room full of humans all day every day, regardless of what I am doing this situation drains my energy superfast, likely increased by my autism (Anxiety +, Tiredness +)
- The desk space I have here does not allow me to see the projected screen while facing my own screen face on, this leads to constantly having to correct my posture once I realise I am twisting (Posture -)

Anxiety and tiredness, a sedentary lifestyle, and bad posture are common contributing factors that can lead to migraines. 

Taking into account the usual weekly problems I face, the addition of this extra anxiety and tiredness, as well as the increased sedentary lifestyle and bad posture, it would be fair to conclude that my participation in this R course contributes a large part to the onset of my current migraine.




Monday, 24 April 2023

Why start Academia against the odds?

Hello world, I am a first-year PhD student looking into rainforest ecology. 

I often find myself questioning why I am doing my PhD. Some might say this it is normal to question what you are doing, list the pros and cons of continuing and make a decision. However, I question myself on a daily basis, sometimes several times a day. I feel as if this is a little bit more often than usual.

I am constantly reminded that I face many challenges in my career, especially going into academia.

- I come from a low socioeconomic background,
- I am the first in my family to complete any university degree, 
- I get regular migraines,
- I am a partial carer for disabled adults in my family, 
- I am diagnosed as being on the Autism spectrum, 
- I have Generalized anxiety disorder, 
- I am known to get depression, 
- and there is ADHD in my family, so I likely have some of these traits as well.

Despite all of this I also know that these challenges won't go away and my questioning of what I'm doing will remain regardless of what I am actually doing.

I am starting this blog as a way to acknowledge and recognise what is going on inside my head, and to help me work through, what I will likely refer to as 'my madness' in future posts. 

I used to blog as a teenager and in my early 20's and found it helped me to process things and to stop bottling it up inside. 

So here's to my early-mid 30's self-help blog? 




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